WP9. National support options for ERN-HCP

  • Leader: General University Hospital in Prague (GUH), Czech Republic

It provides recommendations for improving support to the Centers of Expertise participating in the ERNs.

National support options for ERN-HCP

Objectives

  1. To collect and analyse good practices and mechanisms to provide support to ERN-hosting healthcare providers at national level as well as to individual ERN centres at the hospital (HCP) level.
  2. To develop specific recommendations for: 1. the national support to healthcare providers participating in ERNs, 2. the hospital support to individual ERN centres, 3. the CPMS service and reimbursement models.

Other WPs

  • WP5 National governance and quality assurance models

    National governance and quality assurance models

    • Rizzoli Orthopaedic Institute (IOR), Bologna – Italy, Medical University of Vienna (MUW), University Hospital of Pisa (AOUP)
  • WP6 National care pathways and ERN referral systems

    National care pathways and ERN referral systems

    • Vilnius University Hospital Santaros Klinikos (VULSK), Vilnius – Lithuania, Health Service Executive (HSE) - Ireland, Medical University of Vienna (MUW)
  • WP7 National reference networks (NRN) and undiagnosed disease programmes or equivalent strategies interlinked with ERN

    National reference networks (NRN) and undiagnosed disease programmes or equivalent strategies interlinked with ERN

    • University Hospital Tübingen (UKT), Tübingen – Germany, Medical University of Vienna (MUW)
  • WP8 Data management

    Data management

    • Ministry of Health and Prevention (DGOS), France, Medical University of Leiden (LUMC), Netherlands