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SANT launches public consultation on rare diseases
March 4th, 2025
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- Rare Diseases
- SANT
- Survey
The Committee on Public Health (SANT) launches public consultation on rare diseases
On 28 February, marking the 2025 Rare Disease Day, Parliament’s public health committee kicks off its survey on rare diseases.
The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee on Public Health (SANT) in bringing a better understanding and detailed knowledge of the challenges of persons affected by rare diseases and views of persons working with or involved in rare diseases.
The online survey can be filled in by all interested parties and is open for one month. Citizens, but also stakeholders (patient organisations, representatives of industry, NGOs etc.) have the opportunity to provide anonymous input with information about their difficulties, needs and expectations regarding further EU actions in the field of rare diseases.
Online survey
“The survey is open for one month and can be filled in by all interested parties, also stakeholders (patient organisations, representatives of industry, NGOs etc.).
Fill the survey
