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New publications from the European Commission
February 26th, 2025
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- ERN
- ERNs
- European Commission
- Rare Diseases
Booklet: European Reference Networks. A success story for patients living with a rare disease
Ahead of the Rare Disease Day, the European Commission has published a booklet celebrating the dedication and expertise of the European Reference Networks that make a tangible difference to the lives of patients with rare diseases and their families. The booklet is available in English on the ERNs website. Other languages will be made available in the following weeks.
Go to BookletFactsheet: EU delivering on rare diseases for patients and families
“EU delivering on rare diseases for patients and families”, 4 pages. Available in EN/FR/DE/IT on the ERNs website.
Go to FactsheetFactsheet: How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)
“How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)”, 3 pages. Available in EN/FR/DE/IT on the ERNs website.
Go to Factsheet
