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WP8 workshop on the European Health Data Space and Rare Diseases
November 17th, 2025
Event information
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Location:
Online
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Date:
November 17th, 2025 9:00 am
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Language:
English
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Event mode:
Online
Work Package 8 and SCIENSANO invite JARDIN members and collaborators to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases.
The aim of this online event is to explore how key aspects of the TEHDAS2 public consultation relate to the rare disease community, and to exchange perspectives on both the challenges and opportunities the EHDS presents for data sharing in the rare diseases field.
Clinicians, researchers, data governance experts, legal and ethical specialists, and anyone involved in data sharing, policy, or rare disease registries are welcome to participate in this collaborative exchange.
To receive more information and the link to join the meeting please contact the organising team at: lore.vanespen@sciensano.be
