The Pancyprian Association of Rare Diseases “Unique Smiles” invites you to join us for our annual conference in celebration of World Rare Disease Day named “Early Timely Intervention & Child with a Rare Genetic Disease”, on March 14, 2026 (link to be announced in the upcoming days).
Program
The program will focus on critical areas within rare diseases, including:
- – Developmental milestones and rare genetic diseases: Clinical signs for the pediatrician
- – The significance of timely diagnosis and early intervention in children with rare diseases: Τhe example of endogenous metabolic diseases
- – Early Speech Therapy Intervention in Rare Diseases: Οpening up avenues of communication
- – Physiotherapy: Early identification of challenges and intervention strategies for children with rare genetic diseases
- – The importance of early childhood years: A parent’s perspective on raising a child with a rare genetic disease
- – Parenting a child with a rare genetic disease: Τhe challenges within the family context
- – The Portage program: Early intervention implementation for children with rare genetic diseases
- – Roundtable discussion on the «Portage program and its multiple benefits»
Access the full programme here.
