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FEDER annual press conference: Spanish Rare Disease Day 2025
February 19th, 2025
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- FEDER
- Rare Disease Day
- Spain
Event information
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Location:
Madrid, Spain
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Date:
February 19th, 2025
Spanish Rare Disease Day: diagnosis, treatment and research, the challenges for the group
The Spanish Federation for Rare Diseases (FEDER) has held its annual press conference highlighting the advances and pending challenges for the people living with rare diseases or complex conditions in Spain.
The event was attended by Juan Carrión, President of FEDER and its Foundation, Isabel Motero, Director of FEDER, and César Hernández, Director General of the Common Portfolio of Services of the National Health System and Pharmacy. In addition, Javier Padilla, Secretary of State for Health, intervened via video.
«Because to talk about rare diseases is to talk about people»
Behind every diagnosis, every need, every disease, every symptom, there are people and families. And alongside them, there are people who care, who diagnose, who treat and who research,’ say FEDER.
The Spanish Federation for Rare Diseases (FEDER) presented, at an event held in Madrid, its campaign for Rare Disease Day, under the slogan ‘pERsonas’, with the aim of making visible the reality of more than 3 million people in Spain who live with these pathologies.
