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  • "Impact of Rare Diseases: More than you can imagine". In-person event in Belgium

"Impact of Rare Diseases: More than you can imagine". In-person event in Belgium

  • March 5th, 2025

    • Belgium
    • EURORDIS
    • Rare Disease Day

Event information

  • Location:

    European Parliament, Rue Wiertz 60, Bruxelles, Belgium

  • Start Date:

    March 5th, 2025 1:30 pm

  • End Date:

    March 5th, 2025

  • Event mode:

    In-person, online

EURORDIS-Rare Diseases Europe is organising an in-person event for Rare Disease Day 2025, hosted by MEPs Stine Bosse and Adam Jarubas

EURORDIS-Rare Diseases Europe is organising an in-person event for Rare Disease Day 2025, hosted by MEPs Stine Bosse and Adam Jarubas.

The event, entitled «Impact of Rare Diseases: More than you can imagine», will take place 5 March 2025 from 13.30-15.30 in room József Antall (JAN) 4Q1, European Parliament, Rue Wiertz 60.

Thanks to the participation of key EU policymakers, experts and patient representatives, they will:

●Present the impact of living with a rare disease on individuals and their families, while examining the broader effects of rare disease on healthcare systems, social structures, and society at large.

●Underpin first-hand experiences with the latest data and evidence, offering a comprehensive understanding of the current realities faced by the rare disease community.

●Outline actionable policy solutions at the European level, focusing on legislative and non-legislative measures that should be prioritised and adopted during this EU mandate.

You can find more details of the programme on the event webpage.