CONTACT
For an EU commitment to tackling rare diseases
November 29th, 2024
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- EU4Health
- meeting
- Rare Diseases
Event information
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Location:
Budapest, Hungary
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Date:
November 29th, 2024 9:00 am
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Language:
English, Hungarian
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Event mode:
In-person, online
The EESC is organising a major conference entitled «For an EU commitment to tackling rare diseases» on 29 November 2024 from 9:00 am to 4:00 pm
This conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No One Behind: European Commitment to Tackling Rare Diseases, which was adopted at the October EESC Plenary Session (Rapporteur: Ágnes CSER, Civil Society Organisations – GR III, Hungary).
This event, will take place at the Budapest Congress Centre, in Alkotás street 63-67, in Budapest, Hungary. The event will also be webstreamed in English and Hungarian.
With this event, the EESC will demonstrate once again the commitment of civil society organisations to support the establishment of a European policy framework for rare diseases, bringing together all the stakeholders needed for a concerted strategy in the areas of research, prevention, digital, healthcare, social protection and investment in rare diseases, both at European and national levels.
