CONTACT
Undiagnosed individuals: Shedding light on their condition
April 30th, 2025
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- Italy
- meeting
- Rare Diseases
- Undiagnosed
- webinar
Event information
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Location:
Online: Live streaming on ISS and UNIAMO channels
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Date:
April 30th, 2025 10:45 am
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Event mode:
Online
Wednesday, April 30th
“Undiagnosed individuals: Shedding light on their condition”
Webinar co-organized by Uniamo – Italian Federation for Rare Diseases and the Italian National Institute of Health (ISS), on the occasion of the National Day for Undiagnosed Diseases.
Debate with experts (researchers, clinicians, geneticistis) on national ongoing and future activities, new technologies to support missing diagnosis, issues from natioanl helpline, orphacode classification and Patients Organization (UNIAMO and EURORDIS) point of view.
The program includes a presentation by Ursula Unterberger, who will share JARDIN’s activities and contributions in support of individuals living without a diagnosis.
More information and Zoom link to join the webinar:
