CONTACT
JARDIN WP8 Webinar on Survey Results: Rare Disease Data Management - Barriers and Existing Solutions
March 4th, 2025
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- JARDIN
- meeting
- webinar
- work packages
Event information
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Date:
March 4th, 2025 3:00 pm
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Event mode:
Online
JARDIN WP8 Webinar on Survey Results: Rare Disease Data Management – Barriers and Existing Solutions
The JARDIN Work Package 8 webinar is now available on YouTube
It took place on 4 March 2024 and focused on the Survey Results: Rare Disease Data Management – Barriers and Existing Solutions.
The main findings of the Survey and the identified barriers to data sharing were presented, along with possible solutions.
JARDIN WP8.1 Leading Team: Franz Schaefer, Valentina Neukel, Peter-Bram ‘t Hoehn, Bruna Dos Santos Vieira, Ines DeOliveira Coelho Henrique
Did you miss it? You can now watch it online and download the slides of the presentation:
