JARDIN WP8 Webinar on Survey Results: Rare Disease Data Management – Barriers and Existing Solutions

Dear JARDIN-survey participants,

We are  pleased to invite you to our upcoming JARDIN WP8 Webinar on Survey Results: Rare Disease Data Management – Barriers and Existing Solutions, where we will present the key findings from the Survey and the identified barriers to data sharing along with potential solutions. To participate, please register below.

Topic: Survey Results: Rare Disease Data Management –  Barriers and Existing Solutions
Date: March 4
Time: 15:00 – 16:30 CET

We look forward to your participation and valuable contributions to this important discussion.

Best Regards,

JARDIN WP8.1 Leading Team
Franz Schaefer, Valentina Neukel, Peter-Bram ‘t Hoehn, Bruna Dos Santos Vieira, Ines DeOliveira Coelho Henrique

• Registration