Second Rare Diseases Forum – Rare Diseases Day planned for February

On Friday, 28 February – this year’s International Rare Disease Day – Latvia will host the «Rare Disease Forum 2025», the second educational event of its kind with a diverse programme that will bring together healthcare professionals, patient representatives, decision-makers, people living with rare diseases and their families. This year’s Forum will focus on data, information and understanding.

The Rare Diseases Forum is organised by the Latvian Alliance for Rare Diseases in collaboration with the Rare Diseases Coordination Centre of the Children’s Hospital, the Education and Science Department of the Children’s Hospital and the Continuing Education Centre of Riga Stradins University (RSU).

The aim of the Forum is to provide an opportunity for education and networking, discussion and learning for healthcare professionals, people with rare diseases, parents of children with rare diseases and caregivers.

Participation is free of charge, but registration is required as places are limited. The Forum will be held in person and live-streamed.

The Rare Diseases Forum 2025, organized by the Latvian Rare Disease Alliance, will take place on February 28, 2025, at Riga Stradins University. The event aims to educate medical professionals, patient representatives, and individuals with rare diseases.

Key Details:

• Format: Hybrid (in-person & online)
• Participants: Up to 200 in person, 500–800 online
• Structure:
  • Morning Session (Scientific Part, 9:00–12:30): Presentations on rare disease registries, clinical trials, disability determination, and patient rights.
  • Afternoon Session (Discussions, 13:30–16:20): Topics include reproductive health and rehabilitation for rare disease patients.
  • Practical Session (16:30–17:30)
• Speakers: Experts from medical and legal fields, patient organization representatives, and government officials.

The programme and the link to register for the Forum are available here:

• Programme
• Registration link