Nasjonalt senter for sjeldne diagnoser (NSSD) er et nasjonalt kompetansesenter som koordinerer og utvikler tjenester for personer med sjeldne diagnoser i Norge. NSSD samarbeider tett med de europeiske referansenettverkene (ERN) for å sikre best mulig behandling og oppfølging av pasienter med sjeldne diagnoser.
Kontakt:
Oslo universitetssykehus HF og Haukeland universitetssykehus HF er ERN-medlemmer og representanter for spesialisthelsetjenesten:
Oslo universitetssykehus HF
Haukeland universitetssjukehus
The Norwegian National Advisory Unit on Rare Disorders (Nasjonal kompetansetjeneste for sjeldne diagnoser, NKSD) has transitioned to the newly established Nasjonalt senter for sjeldne diagnoser.
While the centre awaits its official English name and updated logo, they will continue to use the existing name, Norwegian National Advisory Unit on Rare Disorders (NKSD), for international communications.
The Norwegian National Advisory Unit on Rare Disorders (NKSD) is a national competence centre that coordinates and develops services for people with rare diagnoses in Norway. NKSD works closely with the European Reference Networks (ERN) to ensure the best possible treatment and follow-up of patients with rare diagnoses.
Contact:
Oslo University Hospital and Haukeland University Hospital are ERN members and representatives of the specialist health service:
Oslo University Hospital
Haukeland University Hospital